Family engagement is a genuine partnership between professionals and family leaders who represent many different communities and who work together to develop and implement better policies and practices. A family-centered approach to health care includes working with families as equal partners in their child’s care.
The Medical Home Initiative works closely with the family-led organizations of Family Voices, Parent to Parent and other partners to build the capacity of family members to be equal partners in their child’s care and with health care teams. Family engagement and family-centered care improve outcomes for patients and families, increases family and clinician satisfaction, decreases health care costs, and improves effective use of health care resources.
Family engagement has many meanings. In a clinic or hospital, family members may be participating in:
- Health care surveys or suggestion boxes
- Focus groups or interviews
- Development of their child’s care plan
- Advisory boards or councils
- Quality improvement initiative work groups
C.A.R.E. Medical Home Series for Families
This series of four presentations and discussions was developed to support families who have children or youth with special health care needs. The series may be offered individually or in combination, virtually or in-person. At the end of the discussions, participants will understand what a medical home is, how a medical home may benefit their child and family. The discussions are appropriate for both professionals and families.
Join us to learn strategies to coordinate and strengthen communication with your child’s health care team or other partners you work with as well as how it may make your life easier. Families have shared it is a great way to connect with other families and become aware of resources in their area.
To Participate in a Presentation
The five Regional Centers for Children and Youth with Special Health Care conduct these presentations across the state on a regular basis. Connect with your Regional Center to learn of upcoming dates or to be put on mailing list for future trainings.
Caring for the Whole Family | Assembling a Care Notebook | Requesting a Share Plan of Care | Exploring Care Mapping
Caring for the Whole Family (Available Soon)
When you discover that your child is developing differently than their peers, you may experience a wide range of emotions and your landscape begins to change. Join us as we explore those emotions and the realities of raising a child with a special health care need or disability and learn about resources and supports available for your whole family. This discussion is well suited for families who may be new to the world of special health care needs and disabilities. (45-60 min)
Requesting a Shared Plan of Care
What is a Shared Plan of Care? A Shared Plan of Care is a summary of your child’s medical and non-medical information and may be used as a tool for communication. Learn more about the benefits of having one and how to work your provider to develop one. (20-30 min)
Sample Shared Plans of Care:
Assembling a Care Notebook
Care Notebooks are a way to organize your child’s medical records, resources and educational information. Join us to learn ways to assemble and organize a Care Notebook and the benefits of using it to coordinate care. (20-30 minutes)
Exploring Care Mapping
A hands-on opportunity to create a care map that illustrates your family’s strength. A Care Map is a visual way to show all the people and services involved in caring for and supporting your child. Each family’s care map may look different; you decide how many details to include.
Wrap up the session with tying things missing in your family’s Care Map to what is available in your local area. (20-30 mins)
Sample Care Maps:
- Institute for Patient and Family-Centered Care
Learn how to advance the understanding and practice of patient- and family-centered care in all settings.
- Patient Engagement in Redesigning Care Toolkit
This resource contains tools to strengthen patients’ roles in teams designing health care delivery and quality improvements.
- Patient Family Centered Care Partners
Find workshops and resources to improve the quality, safety and experience of health care through family partnerships.
- Team Engagement for Quality Improvement Welcome Booklet
An introduction for families and health care teams working together to improve care for children and youth with special health care needs.
- Family Voices of Wisconsin
Join a statewide network of families who have children with special health care needs. Find information, training and leadership opportunities.
- National Resource Center for Patient/Family-Centered Medical Home
Browse useful resources for parents and caregivers.
- Parent to Parent of Wisconsin
Get connected one-on-one with another parent of a child with special needs.
- Regional Centers for Children and Youth with Special Health Care Needs (CYSHCN)
Wisconsin’s five Regional Centers are staffed by information and referral specialists dedicated to supporting CYSHCN, their families and providers. Services are free and confidential.
The Wisconsin Medical Home Initiative is funded by the Wisconsin Department of Health Services’ Title V Children and Youth with Special Health Care Needs Program and the Maternal Child Health Program located in the Division of Public Health.